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Understanding Terminal Restlessness in Hospice Patients

The final stages of life can bring changes that families are not prepared to witness. A loved one who has spent much of the day sleeping may suddenly become restless, repeatedly move their arms, pull at blankets, or attempt to get out of bed despite being too weak to stand safely. These behaviors can be especially difficult to understand when the patient seems unable to explain what they are experiencing. Terminal restlessness, sometimes called terminal agitation, describes a pattern of restlessness or agitation that may occur as a person approaches the end of life. It can involve physical movements, changes in awareness, emotional distress, or behaviors that appear unusual for the individual. Not every restless episode means death is imminent, and not every dying patient experiences terminal agitation. Similar behaviors can also result from pain, medication effects, urinary retention, or other conditions that may be treatable. Hospice nurses play an important role in assessing these c...

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